Why Do We Need Public and Patient Involvement (PPI)?

The work of the CV-BRC is carried out for the benefit of everyone and it is only worth doing if it is going to make a positive difference to people’s lives. To make sure of this we need people members of the public to get involved in helping guide the research that we do. Medical training or specialist knowledge is not needed, just some time to spare and a willingness to share your thoughts and ideas with us. We want to work with the wider public to use their experiences to help steer research.

There are two main ways of getting involved in the work of the CV-BRC

  •          On a specific study
  •          On our Public and Patient Advisory group (PAG) 

If you are interested in finding out more about our PPI work or getting involved then please register your interest.      

More details can be found on the Patient and Public Involvement Website, and our recruitment leaflet is available here.

You can also follow us on Twitter to see what we are up to @BristolBRC or @CTEUBristol                                                                                             

Patient Advisory Group  

Our PPI advisory group is made up of members of the public who meet on a quarterly basis to discuss the work of the CV-BRC. Some of the tasks the group have been involved in have included;

  •          Helping us to decide what research to look at next
  •          Helping us to ensure that what we look at is important
  •          Contributing to the design of the PPI website and recruitment leaflet
  •          Piloting a survey for researchers in the CV-BRC
  •          Advising on trial design

The PAG meetings are held in an informal and relaxed environment and are organised to fit in with its members' other commitments (taking place on an evening, a weekend or during the working day). If you would like to come along to meet the PAG and learn more about PPI, please register your interest. Everyone who joins our PAG group will have the opportunity to attend learning and development sessions to ensure that they are supported and confident in their PPI role.

Working in Partnership

People in Health West of England (PHWE) 

PHWE is a new initiative promoting innovative and effective public involvement in research and evidence-based service improvement. Working together with PHWE ensures that we involve patients and public in our work in the best way possible and that our public contributors can access the learning and development programmes PHWE offer. The PHWE website gives further information as well as providing a portal for other useful resources.

INVOLVE 

INVOLVE is funded by the National Institute for Health Research, to support active public involvement in NHS, public health and social care research. Their website provides guidance and other resources for public contributors as well as literature developed for researchers looking to involve PPI in their own work.

For more information about taking part in PPI: 

NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) West

West of England Academic Health Science Network (WEAHSN)

Bristol Health Partners (BHP)

NIHR Cardiovascular Biomedical Research Centre (CV-BRC)

NIHR Clinical Research Network (CRN)

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